Is there a bone marrow registry in the Democratic Republic of the Congo?

The DR Congo’s health ministry site had nothing on marrow. [8]

ACP reported on Sept 3, 2024 that Graziella Lutuaya, president of Drépanovie, a DR Congo patients’ association founded in 2023, wanted teams to list people with sickle cell disease in Kinshasa and the provinces, citing the national program’s count of 50,000 births with the disease a year. [17]

Le Phare reported in June 2023 that the Fondation Denise Nyakeru Tshisekedi used World Sickle Cell Day to review renovation work at the DR Congo’s Centre Mabanga for people with sickle cell disease. [18]

France’s registry, checked on Oct 11, 2026, takes people living abroad only if they plan to move back to France, and they must give a French address for the saliva kit, so people who live in the DR Congo can’t join it. [2]

South Africa’s two registries take only people who live in South Africa: on Oct 11, 2026, DKMS Africa’s form asked first whether you live there, and SABMR excluded anyone not living there, so people in the DR Congo can’t join either from home. [6, 7]

Radio Okapi reported that on June 12, 2026 the DR Congo’s National Assembly adopted a bill on preventing, screening and treating sickle cell disease, with free screening from birth to age 18, compulsory premarital screening and specialized centers in every province, and sent it to the Senate before promulgation. [14]

Radio Okapi reported in June 2026 that the DR Congo’s sickle cell bill also aims to end the stigma and discrimination people with the disease face, known there as “SS”, with protections at school, at work and in society backed by court penalties. [14]